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Links

Cancer Datasets

The Netherlands Cancer Registry
http://www.ikcnet.nl/page.php?id=237&nav_id=97

Greater Amsterdam Cancer Registry (with specific data on oa. prevalence and survival data on oral cancer)
http://www.ikcnet.nl/uploaded/FILES/IKA/kankerregistratie/overleving/3.xls

Journals & Publishing

British Medical Journal
bmj.com

Cancer Control Journal at Moffitt Cancer Center
www.moffitt.usf.edu/pubs/ccj/

Cancer Epidemiology Biomarkers & Prevention
cebp.aacrjournals.org/

Cancer Research
cancerres.aacrjournals.org/contents-by-date.2000.shtml

Community Dentistry And Oral Epidemiology
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1600-0528.2005.00251.x

eCancerMedicalScience - an open access cancer journal from the European Institute of Oncology
http://www.ecancermedicalscience.com/

Instructions to Authors in the Health Sciences
www.mco.edu/lib/instr/libinsta.html

Journal of the National Cancer Institute : Cancer Spectrum
jncicancerspectrum.oupjournals.org

Journal of Oral and Maxillofacial Surgery
www.joms.org/

Molecular Cancer Therapeutics
mct.aacrjournals.org/

New England Journal of Medicine
content.nejm.org/

OMIM - Online Mendelian Inheritance in Man
www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM

Oncologist
theoncologist.alphamedpress.org/

Oral Oncology
www.elsevier.com/locate/oraloncology

Online Information Sources

Abbreviations and Acronyms for Oncology: Medical Terminology for Cancer
http://www.staff.ncl.ac.uk/s.j.cotterill/medtm15a.htm

Abramson Cancer Center of the University of Pennsylvania
http://www.oncolink.upenn.edu/

American Cancer Society (where a patient can choose a cancer topic to learn about different types of cancer, risk factors, prevention, treatment [including Treatment Decision Tools], and more. It is also possible to read stories of hope from people whose lives have been touched by cancer and get the latest news).
http://www.cancer.org/docroot/LRN/LRN_0.asp?sitearea

Associazione Italiana Malati di Cancro, parenti ed amici
– Cancer of the nasal cavities, sinuses and mouth
http://www.aimac.it/informazioni/dst/visualizza.php?id_articolo=5648 (Italian)

Australian Science and Technology Heritage Centre - Esmond Venner Keogh Guide to Records
– Index part C (Cancer studies, etc.)
http://www.austehc.unimelb.edu.au/guides/keog/index_c.htm

Cancer Index
www.cancerindex.org

Cancer links from the Best of the Web Directory, UK & Ireland
http://botw.org.uk/Health/Conditions_and_Diseases/Cancer/

Cancerindex.org – Guide to Information Resources for Cancer
http://www.cancerindex.org/clinks1.htm

Cancerindex.org - Cancer Information for Health Professionals
http://www.cancerindex.org/clinks21.htm

Cancerindex.org - Oral Cancer Information for Patients, Physicians and the Public
http://www.cancerindex.org/clinks2x.htm

Center for Current Research : Oral Cancer File
http://www.lifestages.com/health/oralcanc.html

Clinical Guidelines for Head and Neck Cancer : National Comprehensive Cancer Network (USA)
http://www.nccn.org/professionals/physician_gls/PDF/head-and-neck.pdf

Department of Health : Referral Guidelines for Suspected Cancer
http://www.dh.gov.uk/en/AdvanceSearchResult/index.htm?searchTerms=head+and+neck+cancer

Department of Health : Suspected Head & Neck Cancer Referral
http://www.dh.gov.uk/en/AdvanceSearchResult/index.htm?searchTerms=head+and+neck+cancer

European Association of Oral Medicine – Patient Information Leaflets (many by Prof. C. Scully)
www.eaom.net/app/prvt/VediArea.d/Area-115

Information and IT for the NHS
www.doh.gov.uk/ipu

Medic8.com
www.medic8.com

MEDLINEplus : Oral Cancer Information
www.nlm.nih.gov/medlineplus/oralcancer.html

Medicalconferences.com (Litton, Derbyshire) – Conference Listings
www.medicalconferences.com

Merck : Topics for Healthcare Professionals
www.merck.com/pro/

National Cancer Dataset
www.nhsia.nhs.uk/cancer/pages/dataset/default.asp

National Cancer Institute : Cancer Information Service
cis.nci.nih.gov

National Cancer Institute, USA : Head and Neck Home Page
http://www.cancer.gov/cancertopics/cancersbodylocation/page11

National Cancer Institute, USA : Search for literature on head and neck cancer
www.cancer.gov/search/search_cancertopics.aspx?listid=ca7b46be-75a0-4434-a52a-949d46153dc6

National Institute of Dental and Craniofacial Research (NIDCR)
campaign announcement

National Statistics Online : Cancer Map of the UK
http://www.statistics.gov.uk/statbase/Product.asp?vlnk=14059

NHS Centre for Reviews and Dissemination
www.york.ac.uk/inst/crd

OncoLink - Cancer Information, Research and Treatment : University of Pennsylvania
http://www.oncolink.org/

Oral Cancer Foundation : 'Cancer patients' mouth sores relieved in studies'
http://www.oralcancerfoundation.org/news/news2.htm

Oral Cancer Foundation : 'What's new in oral cancer research'
http://www.oralcancerfoundation.org/whats_new_in_oralcavity.htm

Restorative Dentistry Oncology Clinic
www.rdoc.org.uk/

Royal College of Surgeons in Ireland : Library
www.rcsi.ie/library/

Skin Cancer and Benign Tumor Image Atlas : Layola University Education Network
http://www.meddean.luc.edu/lumen/MedEd/medicine/dermatology/content.htm

Support for People with Oral and Head and Neck Cancer
www.spohnc.org

UK Clinical Ethics Network – often updated, many links.
www.ethics-network.org.uk

UK Medicines Information
www.ukmi.nhs.uk

University of York - NHS Centre for Reviews and Dissemination
www.york.ac.uk/inst/crd

Oral Cancer

CancerBACUP online : European cancer information service with practical advice and support for cancer patients, their families and carers.
www.cancerbacup.org.uk

Cancer Information Network (www.thecancer.info) – Oral and Pharyngeal Cancer
www.ontumor.com/oral/index.htm

Center for Current Research, Oral Cancer File
www.lifestages.com/health/oralcanc.html

Dentista online – Oral Cancer
www.dentista.it/html/articoloVis.asp?codart=253 (Italian)

Maxillofacial Center (W. Virginia, U.S.A.) – Precancers of the Head and Neck
http://www.maxillofacialcenter.com/precancer.html

MEDLINEplus : Oral Cancer Information
www.nlm.nih.gov/medlineplus/oralcancer.html

Mouth Cancer Foundation: Initiative of the Restorative Dentistry Oncology Clinic
www.rdoc.org.uk

Mouth Cancer Foundation website: UK based mouth cancer website portal that provides patients, carers and health professionals with easy access to comprehensive information on head and neck cancers and mouth cancer awareness campaigns.
www.mouthcancerfoundation.org

Mouth Cancer Foundation Online Support Group: Provides practical advice and
support for cancer patients, their families and carers.
www.chat.mouthcancerfoundation.org

Multinational Association of Supportive Care in Cancer
www.mascc.org

National Cancer Dataset
www.nhsia.nhs.uk/cancer/pages/dataset/default.asp

National Cancer Institute, USA : Cancer Information Service
cis.nci.nih.gov

National Cancer Institute, USA : Search for literature on head and neck cancer
www.cancer.gov/search/search_cancertopics.aspx?listid=ca7b46be-75a0-4434-a52a-949d46153dc6

National Comprehensive Cancer Network (NCCN)
An alliance of 19 of the world's leading cancer centers, is an authoritative source of information to help patients and health professionals make informed decisions about cancer care. Through the collective expertise of its member institutions, the NCCN develops, updates, and disseminates a complete library of clinical practice guidelines.
www.nccn.org

Netherlands Cancer Institute: Werkgroep Hoofd-Hals Oncologie – English version, more limited than Dutch version. Oral Cancer – Problems, Prevention, Treatments and Web Links.
www.hoofdhalskanker.info/Patient-information.htm (Dutch)

NHS Centre for Reviews and Dissemination
www.york.ac.uk/inst/crd

Oral Cancer Foundation
www.oralcancerfoundation.org

Oral Cancer Foundation : 'Cancer patients' mouth sores relieved in studies' http://www.oralcancerfoundation.org/news/news2.htm

Oral Cancer Foundation : 'What's new in oral cancer research' http://www.oralcancerfoundation.org/whats_new_in_oralcavity.htm

Oral Cancer - Prevention and Detection
www.gla.ac.uk/Acad/Dental/OralCancer

Pohlhaus, Steven R. – Oral Cancer Information
www.stevedds.com/oral.htm

Società Italiana di Patologia e Medicina Orale – Oral Cancer
www.sipmo.it/app/prvt/VediFile.d/File-92/FAQ%20ca%20iper.pdf (Italian)

University of Glasgow Dental School: Oral Cancer - Prevention and Detection
(set your screen to 1024 by 768 pixels)
www.gla.ac.uk/Acad/Dental/OralCancer

University of Manitoba - Oral Cancer Self Evaluation
www.umanitoba.ca/outreach/wisdomtooth/exam.htm

West of Scotland Cancer Awareness Project – Mouth Cancer Training Materials
www.woscap.co.uk/nhsstaff/default.asp?p=da51

Yul Brynner Head and Neck Cancer Foundation
www.headandneck.org/

Oral Leukoplakia

Cochrane Library - Interventions for Treating Oral Leukoplakia (Cochrane Review)
- Lodi G, Sardella A, Bez C, Demarosi F, Carrassi A
www.cochrane.org/cochrane/revabstr/ab001829.htm

emedicine.com - Oral Leukoplakia, Idiopathic
www.emedicine.com/ent/topic731.htm

Head and Neck Cancer

Memorial Sloan-Kettering Cancer Centre
http://www.mskcc.org/mskcc/html/338.cfm

Head and Neck Cancer - information resource : M.D. Anderson Cancer Center, University of Texas
http://www.mdanderson.org/diseases/head_neck/

Head and Neck Cancer: Resection and Neck Dissection by Sanford Dubner, eMedicine.com
http://www.emedicine.com/plastic/topic370.htm

Improving Outcomes in Head and Neck Cancer - Guidance on Cancer Services : National Institute for Clinical Excellence
http://www.nice.org.uk/pdf/csghn_themanual.pdf

Lymphoma of the Head and Neck - Milos J. Janicek, MD, Madelieine D. Fraus, MD, Roman A. Klufas, MD : BrighamRAD
http://www.brighamrad.harvard.edu/Cases/bwh/hcache/47/full.html

Organisations

CancerHelp UK
www.cancerhelp.org.uk

Cancer Research UK (CRUK)
www.cancerhelp.org.uk/help/default.asp?page=13021

National Cancer Institute
Cancer.gov

National Science Foundation (NSF)
nsf.gov

Royal College of Surgeons of England
www.rcseng.ac.uk

Royal College of Surgeons of Edinburgh
www.rcsed.ac.uk

Royal College of Surgeons in Ireland
www.rcsi.ie

Patient Support

Cancer Research UK (CRUK)
info.cancerresearchuk.org/healthyliving/openuptomouthcancer/?a=5441

Mouth Cancer Foundation
rdoc.org.uk/supportgroups.html

Oral Cancer Foundation
www.oralcancerfoundation.org

Support for People with head and neck cancer
www.spohnc.org

Yul Brynner Head and Neck Cancer Foundation
www.headandneck.org/

Talking with Patients

Oncotalk:improving oncologists' communication skills
www.oncotalk.info

European School of Oncology: International, Multilingual Online Training Programme in Psycho-Oncology www.cancerworld.org/CancerWorld/moduleStaticPage.aspx?id=2378&id_sito=1&id_stato=1

University of Texas MD Anderson Cancer Center: communication skills for medical professionals
www.mdanderson.org/departments/Neuro/dIndex.cfm?pn=0337644E-832A-11D4-AEC800508BDCCE3A

Adjuvant! Online: decision making tools for health care professionals
www.adjuvantonline.com/index.jsp

Professional Associations

American Association of Oral and Maxillofacial Surgeons (AAOMS)
www.aaoms.org

American Association of Plastic Surgeons (AAPS)
www.aaps1921.org

American College of Oral and Maxillofacial Surgeons (ACOMS)
www.acoms.org

American Head and Neck Society
www.headandneckcancer.org

Association of Oral and Maxillofacial Surgeons of India
www.aomsi.com

Australian and New Zealand Association of Oral and Maxillofacial Surgeons (ANZAOMS)
www.anzaoms.org

Australian and New Zealand Head and Neck Society
www.anzhns.org

Australian Society of Otolaryngology Head and Neck Surgery
www.asohns.org.au

British Association of Head & Neck Oncologists
www.bahno.org.uk

British Association of Head & Neck Oncology Nurses
www.bahnon.org.uk

British Association of Oral and Maxillofacial Surgeons
www.baoms.org.uk

British Association of Otorhinorlaryngologists Head and Neck Surgeons
www.orl-baohns.org

British Society for Disability and Oral Health
www.bsdh.org.uk

British Society for Oral and Maxillofacial Pathology
www.bsomp.org

British Society for Oral Medicine
www.bsom.org.uk

European Association for Cranio-Maxillofacial Surgery
www.midthird.demon.co.uk/EACMFS.html

European Laryngological Society
www.md.ucl.ac.be/mont/chirurg/orl/larynx/els

European Association of Oral Medicine
www.eaom.net

European Organisation for Research and Treatment for Cancer
www.eortc.be

Indian Society Of Head and Neck Oncology
www.ishno.com

International Association of Oral and Maxillofacial Surgeons
www.iaoms.org

International Association of Oral Pathologists
www.iaop.com

International Federation of Head and Neck Oncologic Societies
www.ifhnos.org

Multinational Association of Supportive Care in Cancer
www.mascc.org

Oral Head and Neck Nurses Group (OHNNG) : an Australian organisation that provides educational opportunities for registered nurses and allied health professionals working in the specialty of Otolaryngology, Head and Neck Surgery.
www.ciap.health.nsw.gov.au/specialties/OHNNG/

Society of Otorhinolaryngology Head-Neck Nurses, Inc. (SOHN)
www.sohnnurse.com

South African Head and Neck Oncology Society (SAHNOS)
www.sahnos.co.za

Special Care Dentistry Association
www.scdonline.org

Telemedicine

Swinfen Charitable Trust
www.swinfencharitabletrust.com

www.scdonline.org

Trials

Researchers at the National Institute of Dental and Craniofacial Research are investigating a new treatment for dry mouth.

The study is recruiting participants who are:
* Adults ages 18 and older
* Previously diagnosed with a cancer of the head and neck
* Experiencing dry mouth caused by radiation therapy
* Cancer-free (5 or more years)
* Not pregnant or breast feeding
* Non-smoker

This treatment involves the insertion of a gene into the remaining cells of the salivary gland. Research in animals has shown that this treatment can increase saliva flow for a short period of time with very few side effects.

More information about this study may be found at ClinicalTrials.gov.
http://www.clinicaltrials.gov/ct2/show/NCT00372320 or at a patient focused website: www.drymouthstudy.com .

Additional details can be obtained by contacting Dr. Bruce Baum at bbaum@dir.nidcr.nih.gov or Linda McCullagh MPH, RN at mccullaghl@nidcr.nih.gov .

NIH Clinical Trials patient information website
(http://www.drymouthstudy.com/)and clinicaltrials.gov site
(http://www.clinicaltrials.gov/ct/show/NCT00372320?order=1)

   

Last updated: 01/01/2011